Lo these many years ago, when Brian Huwe L.Ac. and I were just beginning to round the corner into becoming silver-haired and were both still far more peppered than salted, we volunteered at a hospice facility in our fair city.
The mandatory training for this volunteer work was thorough, touching, and — speaking of salt — showed that those fine folks were worth theirs. We watched videos, read stories, and widened our understandings of healing and dying. Many parts of this training have stuck with me throughout the ages that have since passed, but the pertinent one at present is:
The hospice patient’s bill of rights.
Correct. There’s a nationally accepted hospice patient bill of rights. Now, we here at Huwe Acupuncture are big, big fans of bills of rights. In fact, they are our favorite kind of bills, which might sound like faint praise until you recall that this earth has duck-billed platypi.
In case you are unfamiliar with the term, a bill of rights is a tally of what we can expect as our due. Maybe you’ve even heard that our country has a Bill of Rights (woot to “the Article the third“)!1
In our teensy-weensy Huwe Acupuncture corner of the world, we believe in transparently celebrating and upholding each other’s rights. Full stop. Also, we’re into healing. Ergo, we were intrigued by this hospice bill of rights.2
It includes things like dignity and respect, decision making, and privacy.
All good things. All critical things. All human birthrights, which are what we owe to our dying.
A child’s bill of rights
Years after first viewing the hospice patient’s bill of rights, I wrote a Children’s Bill of Rights for use in our family. This came to be as I was explaining the difference between rights and privileges to the small fry among us. I found there was considerable confusion in their developing brains when it came to naturally assessing the nuances.
(For example: No, unmetered access to Wild Kratts is not a right. Yes, I will still take you to the doctor if your eyes ooze out of your forehead from watching unauthorized Wild Kratts.)
Showing them a list of their rights was incredibly reassuring to their noggins and feelings.
Their bill of rights includes things like access to medical care, food, shelter, and love.
All good things. All critical things. All human birthrights, which are what we owe to our growing.
Your right to recover
But I also found — as is so often the case with writing in general — that it was incredibly reassuring to my understanding to create that bill of rights for my kids.
And then — as is so often the case with life in general — the themes began to merge. The US bill of rights, the hospice patient’s bill of rights, the Huwe family children’s bill of rights, and the Beastie Boys’ (You Gotta) Fight For Your Right all began popping up like road signs pointing me toward something that’s missing.
Y’all, we the people are overworked and under-rested. When we get sick, we do not get ample time to recover. And when we don’t get ample time to recover, we don’t actually heal. And if we don’t actually heal, little problems become big ones.
I believe, in fact, that this is very destructive. I believe we have the right to recover.

Sometimes people are resistant to this idea when it comes to bodies, so it can help to think about it in terms of money instead. Imagine a super freaky amount of debt, then schlep on a balloon mortgage, compounding interest, and other terrors. This is something like what happens when we are denied our right to recovery.
We pop the pills that keep us going and/or alternately sedate us so we can go to the job despite being sick, so we can maybe afford the health insurance that might sorta kinda cover the dialysis we’ll eventually need because our kidneys are shot. And that’s the highly-privileged-case scenario.
Neat!
And, look, I’m certainly not the first to point this out. I wish I could say it’s a brand-new problem that we can just lickety-split fix, but it’s a branded-old problem. It’s a problem designed to keep us hustling, sick, and scrambling in the street around a broken wine cask.3
Very specific groups of people benefit when very specific groups of other people are kept hustling, sick, and scurrying. If we think this doesn’t affect our physiology and psychology, we’re probably not reading this essay.
The road to recovery
So how do we exercise the right to recovery? How do we lay claim to it, enjoy it, and provide it to each other?
Well, dagnab it, it’s one of those things like breathing and exercise. It’s not one-and-done. We have to keep doing it. There’s also no one size fits all. The style of recovery road reclamation will depend upon the situation at hand.
But I do have some pointers. To help, I point us all to Tricia Hersey’s The Nap Ministry, which examines the liberating power of rest. I also point us to the YouTube channel of Dr. Glaucomflecken, whose hilarious videos on medical injustices keep the belly laughs coming.
Here in the US — and in lots of other places on planet Earth, besides — we have an addiction to productivity at the cost of… well… everything? We’re currently sacrificing our children, ourselves, each other, and piddly incidentals like soil, air, and water on the altar of productivity. And we’re calling it freedom.
Societal lurches and freedom propaganda aside, the things people need as a species don’t actually change that much over time. Most things fall into the categories of food, water, shelter, community, sleep, movement, and purpose.
The right to recover falls into a “community” problem –– and, thus, it needs a community solution. We (here in the States anyway) haven’t successfully created and defended a structure that provides paid sick leave for people who need it, while also providing access to medical services that provide those needs and social structures that make accessing those services possible.
It’s more advantageous for the few — and more accessible for the many — if we duct tape ourselves together with quick fixes that allow us to keep going. Until we can’t anymore. Until eating NSAIDs will no longer keep the blinding headaches away. Until that sprained ankle finally snaps. Until that psoriatic arthritis prevents that elbow from bending.
The gnarly problems of healthcare, access to it, costs around it, and who exactly benefits when most of us don’t, all boil down to one ongoing social issue: greed.
And that, for sure, needs our attention. On a large social scale, there is much greed to battle. For the right to recover to prevail, we must demand and vote for changes to our current insurance-based medical model. We must advocate for the healthcare and wages we ourselves want. We must contribute to actual discourse (if we can find it!) and create it when we can’t find it. Yes, yes, of course we must.
Here’s the thing, though. While absolutely necessary in a democratic society, this type of progress can be glacial, and glacial progress can cause despair.
So I propose an additional community-based solution to all that advocating, voting, discoursing, and demanding. I propose we effect immediate change within our communities, change that directly supports the right to recover.
How do we do that? By tightening up our actions and words around (1) our own experiences and (2) our expectations of others’ experiences.
What in the world does that mean? (Or, the Dos and Don’ts of Recovering Our Right to Recover)
So what does it mean to tighten up our actions and words around our own experience and our expectations of others’ experiences?
It means
- Taking every moment we can to not rush ourselves through an illness.
- Making connections with others’ experiences of illness.
Let’s break it down into dos and don’ts.
Taking every moment for you
This means giving yourself a break. And giving yourself a break about taking a break.
If you have the sick days, take them. If you don’t have the sick days, take the unpaid days if you can. If you can’t take the unpaid days, seize any moment that is yours to seize for rest. If you can’t find any moments to seize, drop anything you can that’s in the way. If you can’t drop anything, look again — maybe you can. If you look again and still can’t drop anything, don’t pick up anything else. Find whatever space is yours to claim and claim it for the good of your health.
This will mean asking for help. It will mean needing to rearrange some things. It might mean letting someone down or not doing a thing you said you’d do. Share your experience with the people who need to know, and the people who care. If don’t have any of those in your orbit, rotate on outta there. There are better galaxies.
Normalize recovering by talking about it with other people. Practice grace by asking for it.
Making connections with others
In addition to integrating your right to recovery by taking a break when you need it, you’ll also give others a break for needing the same thing.
Over the years at the clinic, we’ve seen firsthand that many-to-most people feel utterly isolated within their communities because of their health problems. And I promise you, this is not determined exclusively by race, gender, socioeconomic status, age, or any other demographic. It’s a human condition.
It’s because, way too often, we shut each other down. Sometimes when we hear about someone’s health problems — even if we really love that person — we are so uncomfortable with the reality of their suffering that we try to short circuit our discomfort. Perhaps we are worried about them. Perhaps we want to run from the idea that something similar could happen to us.
We might launch a series of platitudes, change the subject, compare apples to oranges, start a variety of sentences with “At least you…”, or otherwise minimize, invalidate, and distract.

This sucks. Let’s not do it to each other.
Instead, normalize recovering by listening to other people talk about their experiences. Practice grace by giving it.
by Mary Beth Huwe
These writings are an exploration of what it means to be human – to be sick, to be well, and to heal – viewed through the lens of classical Chinese medicine. My words aren’t medical advice, and these essays don’t constitute a practitioner-client relationship. They also aren’t meant to be the final word on… well, anything. Rather, I hope they are the beginning of a conversation you have with someone in your life. Thanks for reading!
Footnotes:
- The Bill of Rights: Transcription of the 1789 Joint Resolution of Congress Proposing 12 Amendments to the U.S. Constitution, archives.gov ↩︎
- It was rather challenging to find a specific document, so after some digging I went with the Hospice and Palliative Care Federation of Massachusetts, which cites the Hospice Association of America in its reference to a hospice bill of rights. I could not, however, find a site for Hospice Association of America. ↩︎
- A reference to A Tale of Two Cities by Charles Dickens, published in 1859. The link takes you to a free recording of relevant scene on librivox.org, free public domain audiobooks. ↩︎




















